Monday, November 12, 2007

Mmmmm, Psychotropic Drugs. Just Like M&Ms

Best Quote I Heard All Day
Some may never live, but the crazy never die.--Hunter S. Thompson

Here's another one lost to the perils of manic depression. God, I miss the Duke. But you'll be glad to know that I'm back, medicated, and feeling much, much better.

Seroquel is my lifesaver. With a soupcon of Lamictal. Well, perhaps a tad more than just a soupcon.

Thank you all so much for caring so much. The email I've received, from friends and readers alike, and the wonderful comments you wrote jump-started my morale.

You know, of course, that I'm a stubborn bitch and that I won't rest until I get what I need. I didn't. Damn the system and full speed ahead. That said, I've reinstituted, regurgitated, and generally resurrected Swing Time, the blog I wrote specifically about my manic depression. It's got some good links that I've collected and a far better place to write about my disorder than here.

I stopped writing Swing Time more than a year ago, in part because I thought perhaps it wasn't healthy to write about my disorder and also because I abhor pity parties. I was wrong. First, my writing style does not tolerate my feeling sorry for myself. Second, I think it does help others of my ilk to read about what I do, to talk about disorder management, and to pass on information that I churn up from the depths of wherever.

Seems to me that there are a lot of bipolars who read this blog. Well, get your butt over to Swing Time and let's tawk. And leave this blog for the fiber shit.

Brackets
I finally got my copy of Winter IK. I'm not going to say much about the issue other than to say thanks to all who wrote me about my articles. Needless to say, they edited "Brackets" to the extent where a lot of good stuff was left out. Oh well. I'm not complaining. I'm OK with the editing.

I always give credit where credit is due. And honestly, Brackets is not my invention. It's Neal's. When I first met Neal, he wrote me this absolutely cracked email, written in part by Brackets. Neal's Brackets. [Why do I ALWAYS have to explain everything to everybody in here. I need a raise...or at least better billing...Brackets, what kind of name is that?...MOVE ON!!!..."]

That's Nealie's Brackets talking. So Neal, you're the best, for being my muse and for being my friend. And for being there for me last week when I wasn't exactly too well put together. [Oh Jesus fucking Christ, willya just stick to knitting, ya lazy skank. Enough with the thank-yous. Why don't you fucking start thanking your mother since this is disintergrating into an Oscar circle-jerk?]

Now, that's the Brackets you didn't read in IK. [And obviously, the medication didn't take the edge off, did it?]

Obligatory Knitting Shit
So in the spirit of my newly anointed and medicated self, I actually got some knitting done this weekend, despite moving more stuff up to E'burg. Remember this?


Well, I finally got off my ass and started the last sleeve. Because I really want it finished. It's a pretty sweater and it was about to grow mold in my knitting basket, along with a couple of other projects like the Magenta Diamonds shawl, and several unfinished pairs of socks. And I did finish one bobbin of the Las Vegas Brights silk and started the second.

Perhaps Seroquel should be renamed UFOquel.

So, that said, I will leave you now for my Ikea chair and TV, where I can watch rare and handy crap while I actually get something done.

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Thursday, November 08, 2007

Due to Circumstances Beyond My Control

No Open Mic Thursday this week. Why? Because I'm tired, stressed out, and dysphoric. Hence the story below, which yesterday and today still makes me hot under the collar.

As many of you know, I am bipolar. A well-managed, functional bipolar, to be sure, and one who's always on the lookout for those situational and seasonal triggers that can cause me to feel lousy and need medication adjustment.

Sunday, after running around like an idiot, I realized when I finally got to E'burg with my carload of boxes that my mood swings were spiking fast and furious. As it's known in the psych biz, rapid cycling. Always a big red flag for me. Neal, the world's perfect new next-door neighbor, grabbed me and fed me some of his famous spaghetti because for some reason, I hadn't been thinking about eating. And had managed to drop 8 pounds in a week. Another red flag.

Time to get a checkup from the neck up. And lo! My former doctor is no longer with the clinic, retired. Shit. And I can't get another doctor for at least three weeks. So Monday, I call the insurance company's behavioral services, figuring that I'll walk the party line.

Aetna was surprisingly helpful. They offered to find me a new doctor and suggested that, in the meanwhile, I go to the ER and they'll evaluate me and get me fixed up with a med change or increase, whatever is best.

Sounded like a good idea to me. So I leave work, go to my local ER, explain to the triage nurse exactly why I was there and what the insurance company told me to expect. Fine. She puts me in a treatment room. And there I sit. For two hours, which was briefly alleviated by the comic-relief appearance of a Filipino nurse who ordered me into a hospital gown. She didn't quite realize who she was ordering. A dysphoric, very cranky, bipolar woman, who basically told her to take the gown and shove it where the sun don't shine.

Finally, a woman from the psych ward appears. "Oh, no, we don't prescribe medication here, we only admit and you're not sick enough for that." Gee, so you're telling me that I got to sit here for more than two hours and you won't help me? Right. And here I thought I was being "proactive" in managing my disorder. So, if I had taken the blood pressure cuff, wrapped it around my neck, and pumped it up, they would have given me some drugs?

I was upset. And Mary, the psych ward lady, gave me two phone numbers to call the next day, one for the local behavioral center and the other for a crisis intervention center. "One of these will help you with your meds right away," she says. OK, now three hours gone and still nothing, so I decide it's time to leave the hospital and go home. I was in tears, completely frustrated.

But wait. There's more. Now, the ER head nurse comes in and says, "Oh no, you can't leave. You told the triage nurse that you were agitated and you wanted to hurt someone, so you can't be discharged."

What the fuck? Discharged? I didn't know I had been admitted. I stared at her and I knew that if I blew my stack, they'd probably commit me. Or worse. So I took a deep breath and said, "No, that's not at all true. Yes, I don't feel well but no, I would never harm anyone." (And Brackets, the little voice in my head, said, "But we'll gladly make an exception in your case.")

Fortunately, Mary turned to the nurse and said, "Oh, that's ridiculous. This woman only came in to see if we could help her with some medication. I gave her some contact numbers and she's going home." So the ER nurse, giving me the evil eye, said, "Fine, Mary. YOU can take responsibility for her." And left, her skull unsullied by my fist.

Out the door I went, disgusted by the state of mental health care in this country. I suppose if you want to get immediate help, you'd better wait until you're a raging homicidal and suicidal maniac. Let yourself stew until all of your juices are at boiling point and then the only solution is to admit you to the hospital, thus making the whole episode even pricier than it needed to be. I ask you, who's making bucks from this? Not hard to guess.

As it all turned out, I have an appointment tomorrow morning for a med review at the crisis intervention center with their shrink, and have an appointment with a new doctor at the end of the month. Two days later, granted. But I was able to hang in there, persevere, and ultimately get the treatment I needed, albeit not when I needed it. I made the calls. I got nothing from Aetna, at least so far. I thanked Mary profusely, because she cared enough to help me. The only one.

The one thing that I've decided is that it's important for me to increase my mental health advocacy. It's time to become an activist. And I will because with the Parity Act languishing in Congress, which, if passed, would put mental illness on an insurance par with physical illness, it's time for those of us who suffer from mental disorders to put our money where our proverbial mouths are.

I want the care I need. Without a runaround, without having to go to a psychiatrist who will not take insurance because the insurance companies do not want to cover it. Bipolar disorder is a chemical imbalance, as best as we know now. Here's a sobering statistic: As many as 1 out of every three people with bipolar disorder try to kill themselves. It can be deadly.

So let's make care and medication immediately available to those of us who are willing to seek it in order to manage our disorders and live a happy, productive life. I don't think that's asking a lot.

And now I'm going to bed and get some sleep, a critical component of feeling well.

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